:: Ear Health Screening for Neurofibromatosis Patient ::

Few days back i went for a hearing screening test.
So far, my hearing is good at the normal scale. Later i insist to meet the doctor in charge.

I meet the doctor by the name Dr Lim from Assunta Hospital.
I told him i need to check my ear as i'm a NF patient. He put a smile on his face and he said "Wow....really? Do you have any fibroma on your body?"
I show him the one on my hand. He smile again.

Everything was fine. And he advice me to check my ear every year.


Dulu tak ramai tahu tentang Neurofibromatosis ni...some doctor also didn't know about this. But i'm glad there are afew that really alert about NF.

Come let's spread the word with me!

:: Propolis ::

So i've been told that propolis can decrease or slow down the growth of fibroma....
Today, a friend bought me this..




Hopefully there will be a cure for NF patients like me and the rest of us

Sakit tak kalau ada Neurofibromatosis?

Saya sendiri tak tahu nak cakap samada sakit atau tidak.
Mungkin dari segi fizikal saya atau anak saya nampak ok. Tapi kadang-kadang moral down juga.
Kita tak sama macam orang lain.

Saya ada satu benjolah keras dibahagian lengan yang saya perhatikan semakin hari semakin mengeras. Silap saya tidak bertemu dengan pakar sewaktu pertama kali saya diberitahu saya ada NF.
Waktu itu saya fikir ia cuma 'angin' dalam urat. Tapi saya rasa saya silap.

Longgokkan daging 'lebih' dibahagian belakang badan saya pun semakin hari semakin memberat.
 Saya agak mati akal sebenarnya tak tau apa nak buat.

Saya dah ambil keputusan untuk bertemu dengan doktor saya pada masa terdekat untuk dia buat surat rujukan yang saya boleh refer ke HKL.

Wish me luck.

Neurofibromatosis petition to be sign by all

Dear All,
Kindly help us to sign this petition. Tq CLICK HERE

:: Natural Remedies for Neurofibromatosis ::

Neurofibromatosis is a genetic disorder, also called the von Recklinghausen disease, after the researcher who has documented it.

Although it is hereditary and there is no cure for it, we have found some natural remedies for neurofibromatosis, but ONLY for the simple phase in which you are confronted with skin pigmentation.

So, make sure you follow these simple natural remedies for neurofibromatosis only if you suffer from a mild form of skin spots also called café au lait spots.

So, in order to alleviate the skin spots caused by neurofibromatosis you’ll need to follow an external treatment as follows:

• make a mixture of 40% water, 40% apple vinegar and 20% honey
• pad the spots on your skin with this solution 2-3 times a day
• right before bedtime pad the spots with propolis tincture and then anoint them with Nikeprop ointment (a natural ointment made of propolized black bryony) without massaging.

Also, this natural remedy implies also an internal treatment that goes like this:

• have 1 teaspoon of pollen 20-30 minutes before breakfast and dinner
• have 2 teaspoons of honey mixed with royal jelly
• have a mix of 30 drops of propolis tincture and 30 drops of water
• after each meal have 1-2 teaspoons of propolized honey.

The next natural remedy for neurofibromatosis also applies for the café au lait spots that have extended on your skin. This remedy is somewhat more controversial and you might want to ask your doctor before following it.

However, some people claim that their spots have gone away in only 3-4 days after they started the remedy.

• All you need to do is to rub your spots with burnt engine grease, because this is a wonderful vegetal produce.
• Yes, you’ve heard me, that thing that you smear the car engine with and you need to clear every once in a while because it gets burnt.
• You’ll begin to see your spots start to discolor.

However, these days they use chemicals to better the car oils formula, so before you get your hands on the ball of grease, make sure it doesn’t contain any chemicals, but the vegetal component to it.

Also, try it first on a small surface and see if it works for you, before rubbing it to your entire body. We really hope that you’ll find this remedy really useful and you’ll regain that beautiful skin of yours.

These are the natural remedies for neurofibromatosis that we propose to you and make sure you use them if you found yourself in a mild form of skin pigmentation due to neurofibromatosis, because it won’t work for other symptoms of the disorder.

sumber : http://www.mynaturaltreatment.com/natural-remedies-for-neurofibromatosis/